Sickle Options - Endari

Endari

Health

Pain
Complications
Does it work
Fertility
New illness or worse off
Side Effects

You must take Endari two times each day for it to help you.
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How long have you been taking Endari? Weeks Months Years
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How many times a week do you take your Endari?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How many times a day do you take your Endari?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you take it about the same time every day?

Save
Click to save the above section, so that you may easily reference it later

Pain

Endari may decrease the number of pain episodes and level of pain you feel. Has it effected your pain?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How many pain episodes did you have before your started taking Endari? of episodes in weeks months past year
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How many pain episodes did you have since you started taking Endari? of episodes in weeks months past year
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How often did you take pain medicine for acute pain (pain that is not chronic or always present) before Endari? of pain medicines in a day a week a month
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How often did you take pain medicine for acute pain (pain that is not chronic or always present) after Endari? of pain medicines in a day a week a month
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. If you continue to take Endari, do you expect your pain to improve?

Save
Click to save the above section, so that you may easily reference it later

Complications of Sickle Cell Disease

Complications of Sickle Cell Disease
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you have complications from sickle cell disease?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How many times did you have acute chest syndrome in the year before you started taking Endari? In past year
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had acute chest syndrome since you started taking Endari?
Talk to your doctor about Endari and complications from sickle cell disease

Save
Click to save the above section, so that you may easily reference it later

Fertility

Endari may affect fertility.
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Females - Are planning to become pregnant and you are taking Endari?
Talk to your doctor about pregnancy

Save
Click to save the above section, so that you may easily reference it later

New Illness or Worse Off

New Illness or Worse Off than before Endari
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you developed a new illness caused by Endari?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Has Endari caused your sickle cell complications to worsen?

Save
Click to save the above section, so that you may easily reference it later

Side Effects

Side Effects of Endari
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had nausea from Endari?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. If you had nausea with Endari, is it less if you take Hydroxyurea with food?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had any chest or back pain caused by Endari that you have discussed with your doctor?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had any headaches caused by Endari that you have discussed with your doctor?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had a cough caused by Endari that you have discussed with your doctor?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had any leg or arm pain caused by Endari that you have discussed with your doctor?

Save
Click to save the above section, so that you may easily reference it later

Psychological Well-being

Depression
Isolation
Coping
Personal Identity

Psychological Health
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Has your psychological health changed since starting Endari?
If you have depressions, anxiety or other psychological health issues, tell your doctor

Save
Click to save the above section, so that you may easily reference it later

Managing your Health

Follow doctor’s orders
Hospital admits
Emergency room visits
Manage complications of sickle cell disease

Health Care Needs
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Are you able to schedule your clinic visits ahead of time for your Endari check-ups so you can notify your school or work before you miss a day?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How many emergency room visits did you have in the six months before you started taking Endari? of emergency room visits in 6 months before starting Endari
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Are the number of emergency room visits less now that you have taken Endari for at least 3 months?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How many hospital admits did you have in the six months before you started taking Endari? of hospital admits in 6 months before starting Endari
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Are the number of hospital admits less now that you have taken Endari for at least 3 months?

Save
Click to save the above section, so that you may easily reference it later

Family Life

Role in family
Join in family events and fun
Family health

Family & Friends
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you been able to join in more family events since starting Endari?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Has your family been affected by your health since you started taking Endari?

Save
Click to save the above section, so that you may easily reference it later

Social Life

Work and finances
Education
Spend time with friends

Social Life
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you been able to join in more events with friends since starting Endari?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you missed less work since starting Endari?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you missed less school since starting Endari?

Click to save the above section, so that you may easily reference it later

Your Future

Health
Treatment

Your Future
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you talked with your doctor about Endari since you have started taking it?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you think Endari has helped you?
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you plan to stay on Endari
Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Would you recommend that others start taking Endari?

Save
Click to save the above section, so that you may easily reference it later

Talk to your doctor about your sickle cell disease health and your treatment

BMT – After Transplant – Evaluate

Decision Making Steps

User’s Favorites (Click here to view/print your bookmarks)

Register or Returning users login

Endari - Evaluate

Endari

Health

Pain

Complications of Sickle Cell Disease

Fertility

New Illness or Worse Off

Side Effects

Psychological Well-being

Managing your Health

Family Life

Social Life

Your Future

Talk to your doctor about your sickle cell disease health and your treatment

Return to: