Sickle Options

Reflect on Yourself

Your Health

	Complication & Your Answer
1	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you been too tired or weak to do things?
2	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Is your child small for his or her age?
3	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you have yellowing of your eyes?
4	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had gallbladder pain or gallstones?
5	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had problems with your spleen?
6	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you ever had a serious infection?
7	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you have any kidney damage?
8	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you have eye damage?
9	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Has your child ever had hand-foot syndrome?
10	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you been treated at the hospital for a pain crisis?
11	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you ever had acute chest syndrome?
12	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you have pulmonary hypertension?
13	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had a blood clot in your lung?
14	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had a blood clot in your arm or leg or because of a central catheter (port)?
15	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had a Transient Ischemic Attack?
16	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had a clinical stroke?
17	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had a silent stroke?
18	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you have pain in your hip or hips?
19	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you ever had a leg ulcer?
20	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do / did you have late onset puberty (Male)?
21	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do / did you have late onset puberty (Female)?
22	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had an episode of priapism?
23	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had a pain crisis related to your period?
24	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you had erectile dysfunction?
26	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you ever been depressed?
27	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you feel your quality of life has been affected by your sickle cell disease?
28	Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you have organ damage?

Questions & Your thoughts

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you think your sickle cell disease is getting worse?

Review your sickle cell complications. Talk to your doctor about your health.

Talk to your doctor about what is important to you.

Save
Click to save the above section, so that you may easily reference it later

What You Know about Sickle Cell Disease

Questions & Your thoughts

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. What do you know about your complications of sickle cell disease?

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. What do you know about your possible life span with sickle cell disease?

Save
Click to save the above section, so that you may easily reference it later

What You Know about Endari

Questions & Your thoughts

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you know what the benefits of taking Endari might be for you?

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you know what the risk of taking Endari might be for you?

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you know anyone who has taken Endari? If so, what was the outcome?

Save
Click to save the above section, so that you may easily reference it later

What is Important to You

Your Beliefs

Questions & Your thoughts

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you believe in a higher power? If yes, what is the role of the higher power in your sickle cell disease?

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How do your beliefs affect your sickle cell disease health care?

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How does sickle cell disease affect your purpose in life?

Save
Click to save the above section, so that you may easily reference it later

What You Prefer & What You Expect

Questions & Your thoughts

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Do you think Endari will help improve your sickle cell disease and your health?

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How will you feel if Endari does not work for you and you feel no better?

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. How worried are you that your health might become worse with Endari?

Save
Click to save the above section, so that you may easily reference it later

You, Family & Friends

Questions & Your thoughts

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Does anyone else in your family have Sickle Cell Disease? If so, how has their health been?

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. If you have a family member with Sickle Cell Disease, have they taken Endari? If yes, how did they respond to it?

Save
Click to save the above section, so that you may easily reference it later

Support & Resources

Questions & Your thoughts

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Who helps you care for yourself and your sickle cell disease?

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. What support and resources do you have at work or school to help you with your sickle cell disease?

Save
Click to save the above section, so that you may easily reference it later

Are You Ready for Change

Questions & Your thoughts

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Have you ever talked to your doctor about taking Endari? If yes, what did your doctor say?

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Did you take Endari in the past? If yes, did you stop? Why?

Please login to use the workbook, portfolio and bookmarks Click here to Register or Login Close Success Message. Your Message Goes Here. Did you say no to Endari in the past? If so, why?