Make a Shared Decision


Involves discussion with several people

  • Patient
  • Family
  • Close friends
  • Doctors
  • Nurses
  • Other health care providers

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Doctor and health care providers

  • Know about your health and complications from sickle cell disease
  • Understand the treatment options that may work for you
  • Can answer medical questions about
    • Your health
    • Medical care

You, the patient

  • Know about
    • Your health and complications from sickle cell disease
    • What is important to you
    • Your home life
      • Family
      • Responsibilities
      • Help from others
  • Must learn what medical care  will work best for you
    • How it will affect your sickle cell disease
    • What you must do to take care of yourself

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Shared Decision Making

A process that allows the patient and doctor to work together to make the best decision for the patient.

It takes into account

  • The best scientific evidence
  • What is most important to the patient
  • What type of care the patient prefers

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Work with your doctor to decide whether to move forward with a new treatment plan.


It may take several clinic visits with your doctor, other health care providers, family and friends before making a decision about your sickle cell disease care.

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Endari – Reflect on Yourself
Plan of action